Down syndrome Awareness: Kennedi
Join us in October for Down Syndrome Awareness Month as families from one of our Ds support groups share,
what they wish others knew about their child with Down syndrome.
Hi! I am Brittany & I am a 29 year old momma to a little girl named Kennedi. Kennedi was born a week early and spent around a month and a half in the NICU. I was familiar with Down syndrome when I got her diagnoses around 10 weeks. I never questioned anything, I knew she was going to be just PERFECT!
I am embarrassed to admit that when I got the Ds diagnosis; although familiar, I was still VERY uninformed. If we are being honest, I thought that the milestones would be hit just like any other ‘typical’ child. At some point the child would just slow down, I was wrong. Gosh! I was wrong!
I learned SO much. I learned patience, kindness, self-control, peace and most importantly to just trust the process. The process is a perfect timing type of thing. This world is theirs and we just live in it.
Kennedi has soared above and beyond all obstacles thrown her way. At just a month old she had a G-tube placed due to inability to eat. I was hesitant at first but if this meant brining her home to mommy, I was willing to get it done. Fast forward a year and just a couple days after her first birthday, she had open heart surgery. This little girl went in on a Wednesday for surgery and was home by Saturday! SATURDAY!
My momma heart wasn’t ready, but Kennedi was ready to come home again. My Kennedi has since lost her G-tube and eats everything, she loves food! I am amazed every day by this girl. Kennedi is the light of anyone she comes into contact with. I am sure ALL of our babies are. I have heard and learned FIRST HAND that if you are to tell our kids they cannot, they will PROVE not only they can, but will exceed all expectations.
A Ds diagnoses doesn’t define a person. Down syndrome is the innate ability to see the good and beauty in the world, to radiate joy, happiness and to offer a unique perspective on life with the ability to change others’ perceptions. Being Kennedi’s momma is my greatest accomplishment.
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Religion that God our Father accepts as pure and faultless is this: to look after orphans and widows in their distress and to keep oneself from being polluted by the world. – James 1:27 NIV